The Genetic and Newborn Screening Advisory Council has established a task force on Pompe Disease and Mucopolysaccharidosis Type 1 (MPS I). The purpose of this task force is to obtain information regarding the ability to distinguish between the ...

 

DEPARTMENT OF HEALTH

Division of Children's Medical Services

The Florida Department of Health announces telephone conference calls to which all persons are invited.

DATES AND TIMES: Thursday, March 29, 2018, 1:00 p.m. – 3:00 p.m.; Thursday, April 19, 2018, 1:00 p.m. – 3:00 p.m.; Thursday, May 31, 2018, 1:00 p.m. – 3:00 p.m.; Thursday, June 28, 2018, 1:00 p.m. – 3:00 p.m.

PLACE: Telephone conference call: call-in number 1(888)670-3525, participant code 2883350850

GENERAL SUBJECT MATTER TO BE CONSIDERED: The Genetic and Newborn Screening Advisory Council has established a task force on Pompe Disease and Mucopolysaccharidosis Type 1 (MPS I). The purpose of this task force is to obtain information regarding the ability to distinguish between the various forms of these disorders through newborn screening and assess the Newborn Screening Program’s capacity and capability to screen for these disorders.

A copy of the agenda may be obtained by contacting Ivy Shivers, [e-mail].

Pursuant to the provisions of the Americans with Disabilities Act, any person requiring special accommodations to participate in this workshop/meeting is asked to advise the agency at least 3 days before the workshop/meeting by contacting Ivy Shivers, [e-mail]. If you are hearing or speech impaired, please contact the agency using the Florida Relay Service, 1(800)955-8771 (TDD) or 1(800)955-8770 (Voice).

If any person decides to appeal any decision made by the Board with respect to any matter considered at this meeting or hearing, he/she will need to ensure that a verbatim record of the proceeding is made, which record includes the testimony and evidence from which the appeal is to be issued.

For more information, you may contact Ivy Shivers, [e-mail].