Agency for Health Care Administration, Medicaid  




    Familial Dysautonomia (FD) Waiver Renewal Request

    The Agency for Health Care Administration (Agency) is submitting a request to renew the Familial Dysautonomia (FD) Waiver, which operates under the authority of Section 1915(c) of the Social Security Act, to the Centers for Medicare & Medicaid Services (CMS). The Agency is providing public notice of the 30-day public comment period as specified in 42 CFR 441.304(f) to solicit meaningful input from recipients, providers, and all stakeholders on the renewal request prior to submission to CMS.

    SUMMARY DESCRIPTION OF RENEWAL REQUEST: Significant changes to the approved waiver that are being made in the renewal application include:

    ·         An update to performance measures and/or the applicable remediations in Appendices A, B, C, and D

    ·         Updated language to clarify training activities allowed under Non-Residential Support Services

    ·         Clarified coverage requirements when participants receive services through a Medicaid dental plan

    ·         Updated Fair Hearing contact information

    ·         Updated Appendix J/Derivation of Estimates

    ·         Updated Derivation of Estimates and the CPI rate to reflect the most current rate

    To view the full description of the proposed renewal request, please see the public notice documents published on the Agency’s Web site at the following link: 

    PUBLIC NOTICE AND PUBLIC COMMENT PERIOD: The Agency will conduct a 30-day public notice and comment period prior to the submission of the proposed renewal request to the CMS. The Agency will consider all public comments received regarding the proposed renewal request. The 30-day public notice and public comment period is from August 13, 2019 through September 11, 2019. This public notice and public comment period is being held to solicit public input from recipients, providers, and all stakeholders and interested parties.

    When submitting comments, please include “Proposed Renewal to 1915(c) FD Waiver” in the subject line:

    ·         Submit email comments to

    ·         Submit comments by mail to Bureau of Medicaid Policy, Agency for Health Care Administration, 2727 Mahan Drive, MS 20, Tallahassee, Florida 32308.

    For more information, you may contact: Etasha Gonzalez at (850)412-4261 or If you are hearing or speech impaired, please contact the agency using the Florida Relay Service, 1 (800) 955-8771 (TDD) or 1 (800) 955-8770 (Voice).

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